A Study on Stress Level, Happiness, Challenges, and Emotional Bonds of Parents having Children with Disabilities Availing Services at NIEPMD, Chennai

Shanthini Kalpurniya; Rajesh Ramachandran; Neeradha Chandramohan

doi:10.55544/ijrah.3.5.7

Authors

Shanthini Kalpurniya Social Worker (S &P), NIEPMD, Chennai, INDIA.
Dr. Rajesh Ramachandran Rehabilitation Officer (S & P), NIEPMD, Chennai, INDIA.
Dr. Neeradha Chandramohan Former Director, NIEPMD, Chennai & HOD, Department of Clinical Psychology, SRMC, Chennai, INDIA.

DOI:

https://doi.org/10.55544/ijrah.3.5.7

Keywords:

Parent, stress and children with disabilities

Abstract

Being a parent is normally a joyous occasion and creating emotional bond between parents and their children is special, but in certain situations, lives of parents' are plagued with challenges and are concerned about their ability to maintain their child's physical, emotional, or economic well-being. It is very important to understand as how it is like to be a parent, because this helps to enhance the wellbeing of both parents and their children, especially if the child born is having disabilities. The study here consisting of equal distribution of male and female (N =100, Male = 50 and female = 50) coming to NIEPMD for rehabilitation services were taken as samples to find out stress level of parents of children having disabilities based on gender, based on age of the parent, based on the educational qualification of the parent, based the diagnosis of the children having disabilities. The Parental Stress Scale (PSS) questionnaire developed by Berry & Jones (1995) is a standardized scale and was used to assess parental stress. The researchers obtained due permission to use the scale from the author. The findings of the study revealed that 63% of the parents are having high level of stress in particular female parent are experiencing high level of stress (33%). Findings based on age shows that 35% of parents aged between 31-40 are having high level of stress, based on educational qualification of the parent 27% of the parents who completed under graduation are having high level of stress and based on the diagnosis of the children 25% of the parents having children diagnosed with Autism Spectrum Disorder are having high level of stress. The result implicated that parents having children with Autism Spectrum Disorder are having high level of stress. Understanding these fundamental results and trends allows practitioners and researchers to develop customized interventions and support methods to promote positive parenting experiences and improve the well-being of parents and children.

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References

Ainsworth, M. D., Blehar, M. C., Waters, E., & Wall, S. (1978). Patterns of attachment: A psychological study of the Strange Situation. Lawrence Erlbaum.

Aldosari, M.S., & Pufpaff, L.A., (2014). Sources of stress among parents of children with Intellectual Disabilities: A Preliminary Investigation in Saudi Arabia. Journal of Special Education Apprenticeship, volume 3 no.1. ISSN: 2167-3454

Anpalagan, S. a/p, Yusop, Y. M., Zainudin, Z. N., Othman, W. N. W., Kari, D. N. F. M., & Surat, S. (2021). Parental Stress among Parents of Children with Learning Disabilities. International Journal of Academic Research in Business and Social Sciences, 11(12), 63–77.

Auriemma, D.L., Ding, Y., Zhang, C., Rabinowitz, M., Shen, Y., Galatas, K.L., (2021). Parenting Stress in Parents of Children with Learning Disabilities: Effects of Cognitions and Coping Styles. The Division for Learning Disabilities of the Council for Exceptional Children, 37(1), 51-63.

Bandura, A. (1977). Social learning theory. Englewood Cliffs, NJ: Prentice-Hall.

Baumrind, D. (1966). Effects of authoritative parental control on child behaviour. Child Development, 37(4), 887-907.

Berry, JD, & Jones, W,H, (1995) The Parental Stress Scale : initial psychometric evidence. Journal of Social and Personal Relationships, 12, 463 – 472

Bowlby, J. (1969). Attachment and loss: Attachment (Vol. 1). Basic Books.

Bujnowska, A. M., Rodríguez, C., García, T., Areces, D., & Marsh, N. V. (2021). Coping with stress in parents of children with developmental disabilities. International journal of clinical and health psychology : IJCHP, 21(3), 100254.

Cabrera, N. J., Tamis-LeMonda, C. S., Bradley, R. H., Hofferth, S., & Lamb, M. E. (2000). Fatherhood in the twenty-first century. Child Development, 71(1), 127-136.

Caprara GV, Barbaranelli C, Pastorelli C, Bandura A, Zimbardo PG. Prosocial foundations of children’s academic achievement. Psychological Science. 2000;11(4):302–306.

Crnic, K. A., Gaze, C., & Hoffman, C. (2005). Cumulative parenting stress across the preschool period: Relations to maternal parenting and child behaviour at age 5. Infant and Child Development, 14(2), 117-132.

Crnic, K. A., Greenberg, M. T., Ragozin, A. S., Robinson, N. M., & Basham, R. B. (1983). Effects of stress and social support on mothers and premature and full-term infants. Child Development, 54(1), 209-217.

Deater-Deckard, K., Wang, Z., Chen, N., & Bell, M. A. (2012). Maternal executive function, harsh parenting, and child conduct problems. Journal of Child Psychology and Psychiatry, 53(10), 1084-1091.

Desmarais, K., Barker, E. & Gouin, J P. Service Access to Reduce Parenting Stress in Parents of Children with Autism Spectrum Disorders. Curr Dev Disord Rep 5, 116–123 (2018).

Feizi, A., Najmi, B., Salesi, A., Chorami, M., & Hoveidafar, R. (2014). Parenting stress among mothers of children with different physical, mental, and psychological problems. Journal of research in medical sciences : the official journal of Isfahan University of Medical Sciences, 19(2), 145–152.

Gerstein ED, Crnic KA, Blacher J, Baker BL. Resilience and the course of daily parenting stress in families of young children with intellectual disabilities. J Intellect Disabil Res. 2009 Dec;53(12):981-97. doi: 10.1111/j.1365-2788.2009.01220.x. PMID: 19874449; PMCID: PMC2796238.

Hasnat MJ, Graves P. Disclosure of developmental disability: a study of parent satisfaction and the determinants of satisfaction. J Paediatr Child Health. 2000 Feb;36(1):32-5. doi: 10.1046/j.1440-1754.2000.00463.x. PMID: 10723688.

Hsiao, Y.-J. (2017). Parental Stress in Families of Children With Disabilities. Intervention in School and Clinic, 53(4), 201–205. doi:10.1177/1053451217712956

https://education.umd.edu/sites/default/files/uploads/inline-files/Cabrera%20et%20al%20fathers_in_caregiving%20Cambridge%20Handbook%20of%20Parenting%20%281%29_0.pdf

https://ffcws.princeton.edu/sites/g/files/toruqf4356/files/documents/wp13-04-ff.pdf

https://researchonline.jcu.edu.au/68232/1/Bujnowska%20et%20al.%20%282021%29.pdf

https://www.frontiersin.org/articles/10.3389/fpsyg.2019.00872/full

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4085672/

https://www.researchgate.net/publication/226364600_Kindergarten_Transition_Preparation_A_Comparison_of_Teacher_and_Parent_Practices_for_Children_with_Autism_and_Other_Developmental_Disabilities

https://www.researchgate.net/publication/232592479_The_transactional_model_of_development_How_children_and_contexts_shape_each_other

https://www.researchgate.net/publication/258501686_Parents_Are_Slightly_Happier_Than_Nonparents_but_Causality_Still_Cannot_Be_Inferred_A_Reply_to_Bhargava_Kassam_and_Loewenstein_2014

https://www.scirp.org/(S(czeh2tfqyw2orz553k1w0r45))/reference/ReferencesPapers.aspx?ReferenceID=1613570

https://www.scirp.org/journal/papercitationdetails.aspx?paperid=109128&JournalID=148

Jones L, Totsika V, Hastings RP, Petalas MA. Gender differences when parenting children with autism spectrum disorders: a multilevel modeling approach. J Autism Dev Disord. 2013 Sep;43(9):2090-8. doi: 10.1007/s10803-012-1756-9. PMID: 23307420.

Kuppens S, Ceulemans E. Parenting Styles: A Closer Look at a Well-Known Concept. J Child Fam Stud. 2019;28(1):168-181. doi: 10.1007/s10826-018-1242-x. Epub 2018 Sep 18. PMID: 30679898; PMCID: PMC6323136.

Lamborn, S. D., Mounts, N. S., Steinberg, L., & Dornbusch, S. M. (1991). Patterns of competence and adjustment among adolescents from authoritative, authoritarian, indulgent, and neglectful families. Child Development, 62(5), 1049-1065.

Leerkes, E. M., Weaver, J. M., & Calkins, S. D. (2017). Maternal physiological dysregulation while parenting poses risk for infant attachment disorganization and behaviour problems. Development and psychopathology, 29(1), 245–257.

Marsha Mailick Seltzer, Jan S. Greenberg, Frank J. Floyd, Yvette Pettee, Jinkuk Hong (2001). Life Course Impacts of Parenting a Child with a Disability. Am J Ment Retard 1 May 2001; 106 (3): 265–286.

McBride, B. A., Schoppe-Sullivan, S. J., & Ho, M. H. R. (2005). The mediating role of fathers' school involvement on student achievement. Journal of Applied Developmental Psychology, 26(2), 201-216.

National Academies of Sciences, Engineering, and Medicine (2016). Parenting Matters: Supporting Parents of Children Ages 0-8. Washington, DC: The National Academies Press

Nelson, S. K., Kushlev, K., & Lyubomirsky, S. (2014). The pains and pleasures of parenting: When, why, and how is parenthood associated with more or less well-being? Psychological Bulletin, 140(3), 846-895

Nomaguchi, K. M., & Milkie, M. A. (2003). Costs and rewards of children: The effects of becoming a parent on adults' lives. Journal of Marriage and Family, 65(2), 356-374.

Peshawaria. R. et. al (1995). Understanding Indian Families, Having persons with Mental Retardation.NIMH India, Secunderabad

Rajesh Ramachandran (2017). An exploratory study on the type of information regarding needs of parents having children with Autism Spectrum Disorder (ASD), Indian Journal of Applied Research: Volume 7, issue 4, April-2017

Sameroff, A. (Ed.). (2009). The transactional model of development: How children and contexts shape each other. American Psychological Association.

Seltzer MM, Greenberg JS, Floyd FJ, Pettee Y, Hong J. Life course impacts of parenting a child with a disability. Am J Ment Retard. 2001 May;106(3):265-86. doi: 10.1352/0895-8017(2001)106<0265:LCIOPA>2.0.CO;2. PMID: 11389667.

Thompson T, Coleman J, Olmos A. The expressed emotion of parents of children with developmental disabilities: A meta-analysis. Life Span Disabil. 2018 Jul-Dec;21(2):177-189. PMID: 35392246; PMCID: PMC8986135.

Vilaseca R, Rivero M, Bersabé R M, Cantero M-J, Navarro-Pardo E, Valls-Vidal C and Ferrer F (2019) Demographic and Parental Factors Associated With Developmental Outcomes in Children With Intellectual Disabilities. Front. Psychol. 10:872.

Volling, B. L., McElwain, N. L., Notaro, P. C., & Herrera, C. (2002). Parents' emotional availability and infant emotional competence: predictors of parent-infant attachment and emerging self-regulation. Journal of family psychology: JFP : Journal of the Division of Family Psychology of the American Psychological Association (Division 43), 16(4), 447–465.